I cannot
ever remember having a more enjoyable time in a medical office in my life than
meeting with Dr. William Krimsky, Director of Interventional Pulmonology at
MedStar Franklin Square Medical Center, and a national leader in interventional
pulmonology along with Ruth Doerfler-Evans, RN and Thoracic Coordinator Navigator. I
felt comfortable with them perhaps even sympatico. He even high-fived Megan on breaking me the
news of my previous EBUS flatline with the question, “Well, are you resurrected or a zombie?”
They obviously had read through and enjoyed sections of my ‘cancer book’ as I call
the binder of 2 inches of records from the last 16 months interspersed with
blog entries. I had duplicated the binder and sent it ahead two weeks ago. We
talked and even laughed about parts of my lung cancer odyssey.
We ALL
adjourned to a large screen PC to talk about ‘Bob’. Words are a fine
distinction but when you live with a diagnosis of lung cancer it’s words of
hope vs words that suck the hope out of you.
We
agreed to get in that right lung in just 4 mornings actually a pre-dawn pre-op on Friday and get some pieces of Bob to biopsy with Endobronchial Ultrasound (EBUS) Biopsy. God willing Megan should be driving me
home by late morning / early afternoon.
Returning
home on Monday I was rudely reminded of the flaws of country mouse cancer
treatment vs city mouse. PinnacleHealth Fredrickson Outpatient Center, where I
have had most of my tests and scans done over the past year, will not do STAT
testing much less fax results unless the procedure or surgery is being
performed at PinnacleHealth. This fiefdom focused medical care is so the
antithesis of patient focused medical care I had treasured for a couple hours
today.
Sooo Wednesday
morning I’m driving back down to Baltimore for EKG and blood work and if
nothing is strange about results – EBUS here I come.
16
months ago, today, I learned an X-ray had revealed a 9 mm vague nodular density
in my left upper lobe. I have learned along the way that lung cancer treatment
is a lot like turning over rocks I’ll never quite know what is underneath until
somebody helps me pick it up and look.
I hope Friday's biopsy finds 'Bob' is just a pissed off lymph node, should 'Bob' be cancerous I pray for the courage and wisdom to face such a game changer.
I hope Friday's biopsy finds 'Bob' is just a pissed off lymph node, should 'Bob' be cancerous I pray for the courage and wisdom to face such a game changer.
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
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