CaregivinglyYours and My Lung Cancer Odyssey cohabitate these days. Sooo, Saturday morning I put my Stage 4 lung cancer with brain metastasis on my back and pushed my wife’s wheelchair over a sizable chunk of the 35+ acres of paved walking paths, stone or grass covered areas, and frankly
at times near vertical terrain of the Great PA FlavorFEST™ on the medieval
themed grounds of the Pennsylvania Renaissance Faire. Patti was blindsided and physically broken by Multiple Sclerosis in 1989 yet with a little help, the person trapped inside her body and I have been doing this annualy on Memorial Day weekend for years.
Saturday was
my first day off after a consecutive week of brain radiation treatments, 8 down
2 to go.
Brain
radiation has zapped the physical symptoms of lung cancer metastasis and here
again the stigmas of treatment have not happened. … Well OK I admit I did
launder my wallet the other night, forgetting to take it out of my pants. As I
have never done such a thing in my life that I’ll have to chalk up to brain
radiation.
Empowered
by our daughter’s assistance we headed out on this beautiful autumn morning as
we picked Patti up from her Care Facility under sunny 48°F (8.8°C) skies. … ..
What is not to like about free parking, free admittance, and free tasting of wines, beers, and foods?
Bee
venom therapy was a two year campaign in Patti’s quarter
century war with MS. Since then bee related products have always caught my
attention. ... Soooo
reading of a vineyard, Bee Kind Winery, that incorporated not only
traditional grapes and fruits but also homemade wildflower honey … was a must free taste stop for me. It
was so heavenly I bought a bottle of their “Bee Berry Black.”
We ended
the day in the ‘Globe Theatre’ feasting on frozen lemonade, Irish nachos, frozen
chocolate cappuccino, and roasted turkey legs. Yes, I had to finger feed Patti
tearing pieces off my turkey leg, and collective Irish Nachos but frankly it always looks
more like “here taste this” than assisted outdoor dining. Most important there were
no MS dysphagia related choking or swallowing episodes. Since verbal cues are always
necessary, I had fun creating hand puppet verbal cues to compensate for volume
of music.
Mark DeRose and the Dreadnought Brigade launched into Van Morrison's spirit quest song “Into The Mystic” as I drifted
in my seat back to the first time I fell in love with that song in 1970. Except now 43 years later not only my body and my soul but also my roasted turkey leg began to sway:
“We were
born before the wind
Also
younger than the sun …”
BBC
claimed in a 1999 study that it’s among the most popular songs doctors listen
to while operating.
Lung
Cancer take your paws off my “gypsy soul”. Medical professionals have likewise
noted the improvement. Following my 7th radiation treatment, I
high-fived my radiation oncologist, Stephen J. Milito, M.D. as he reduced my steroids
as part of the attack on the metastatic lesions.
Meeting
with my pulmonologist , Todd Eckroth, of Carlisle Regional Sleep
Disorder Center later that morning he checked me out including pulmonary
function tests and found my lungs ‘good’ especially considering I had a piece
removed last year and was being treated for lung cancer. My Oxygen Blood Level was 96%.
Most
important to me was not only did we have a fun family day but Saturday’s outing
was our 4th this week, a record since my abduction from Stage 1 lung
cancer to Stage 4.
Patti’s
MS dementia erases my diagnosis in her mind, conversation and activities. My
lips to God’s ears, having NO lung cancer is best if only for a couple hours.
Exiting
the Renaissance Fair grounds up the steepest hill, I confess to pausing to
catch my breath, obviously Patti has gained some weight. :)
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/
My Lung Cancer Odyssey @ http://lung-cancer-survivor.blogspot.com/
Sounds like a little sumpin' for everyone! There's a Bee Kind shop in Sebastopol, CA where Kate used to live - it sells every bee product imaginable (honey, beeswax candles and the like) - but no wine! (Of course the rest of Sonoma County has hundreds of wineries from which to choose.)- however, I always liked Bee Kind. Sounds like a lovely day of family fun. Quite a nice weekend - here in College Park we are enjoying a weekend of sun and blue skies and temps in the 60's and 70's and NO humidity! (VERY unlike most Memorial Day weekends!)
ReplyDeleteHey Liz! unfortunately bee venom therapy was not a success, however for two years it held MS at bay as good as or better than drugs. Apitherapy for health is so unusual in US as I said I find myself intrigued by it's mention, especially something like wine making. Enjoy what remains of Memorial Day weekend and my best to all.
DeleteThanks for sharing information.
ReplyDeletethanks for visiting. Day by day I am learning it is about taking control. Sharing information empowers knowledge to fight.
DeleteIrish nachos? Potatoes? Cabbage? Black pudding? That should cure what ails you!
ReplyDeleteJust checking in, to let you know I'm following along. Strength, friend.