Showing posts with label palliative care. Show all posts
Showing posts with label palliative care. Show all posts

Thursday, August 22, 2013

Disability Stage 4 Lung Cancer

Sitting down with my oncologist Tuesday … we talked about latest symptoms of fatigue, fatigue and more fatigue … chemo fog ... intermittent knee pain … intermittent dizziness … intermittent shortness of breath … phlegmy cough and mucus with chemotherapy.

Chemo fog and associated mental confusion so impaired my ability to complete Patti's Long Term Care renewal ... that what should take a week of paperwork took weeks ... and almost caused me a catastrophic misfiling of her renewal.

Expressing my desire to try radiation on the remaining tumor (after all I went through 10 whole brain radiation treatments with out a problem and worked throughout the treatment) ... she explains that while radiation could attack the tumor it would do nothing about the potential spread of cancer … this is Stage 4 and metastasis is a constant threat … seen or unseen.

After 12 weeks off getting my butt kicked by aggressive chemotherapy, I share that I NEED to return to work  … except I hear the unimaginable words “you may never work a full day again” ... “you may never return to your previous level of abilities”…chemo side effects can be cumulative and each patient is different ... this is the worst time for chemo patients in her opinion ... combining side effects with quality of life ... my oncologist suggests considering applying for social security disability for me and inquire about hospice nursing at home to help take the load off Megan. 

Cold hands reach up from the chemo fog and scratch "depression" on the symptom list before dragging me down the rabbit hole …

We agree to postpone Chemo Round 4, take a brief break from chemo, digest 'quality of life' issues and talk again next week.

Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/

Monday, August 5, 2013

WEBINAR: Improving Lung Cancer Treatment With Palliative Care


Webinar by National Lung Cancer Partnership featuring Jennifer Temel, MD, Massachusetts General Hospital
Improving Lung Cancer Treatment With Palliative Care
Well worth the watch!!!! I would also recommend a bowl of popcorn, it runs a about an hour ... 

Also rumaging around on their website I found their LUNG CANCER personalized care plan  ... a user friendly download tool for those not only fighting to outlive lung cancer but for family, friends and caregivers ... not as detailed as my three 2" binders of My Lung Cancer Odyssey but a helluva lot easier to carry around and/or share. 

--
Patrick Leer
Health Activist:
Caregivingly Yours, MS Caregiver @ http://caregivinglyyours.blogspot.com/